Email sent to Asisstive Technology

"The switch by my bed, connected to the telephone handset, which rings internally is working really well to contact my overnight care. One niggle, I cannot hear whether the handset is ringing upstairs: consequently, I keep ending the call before it is answered. Is there any way to make the base unit ring when the handset is ringing? Do you have any other solutions? Hope the website is going well." - Rachael

Emails exchanged with Nutricia Nurse

Appointment made and confirmed for overnight feed demonstration on 27/09/10 at 10am.

Email received from Nutricia Nurse

Marie emailed to confirm she had the right email address for me and to set-up appointment for an overnight feed demonstration.

Email received from Dietician

Claire said Nutricia have been contacted and feeding tubes will be amended to the regular type for tomorrows delivery. Claire also said she has left a message for a Nutricia nurse to contact her asap about an overnight feed demonstration.

Visit from Dietican

Claire queried how often Rachael eats. She said at least one bowl a day and explained need for overnight feeding. Discussed changing feeding tubes from mobile type to regular type. Claire said she will contact Nutricia today and try and get tubes changed for delivery tomorrow. Claire said to commence overnight feeding at 50mls/hr, then to increase by 10mls/hr every night thereafter until a maximum of 100mls/hr dependent on Rachael's tolerance.

Respiratory Appointment at Wy Hospital

Blood gas test results showed as normal. Dr B ran through options for non-invasive vent but did not feel it was necessary yet. He advised against using general anaesthetic. We discussed choking episodes in the night and Dr B said that this is not necessarily due to anxiety but a sign of bulbar distress.

Urology Appointment at TG Hospital

Dr R said he was going to speak to Anaesthetist and Dr B before emailing back. Dr R seemed shocked that Rachael does not have 24 hour care.