Call made to GP

Phoned and spoke to the secretary to order a "Just in Case" kit from the MND Society. She said she would pass on the information to Dr G and she would get back to Rachael asap. Left details for further contact.

Email sent to MND Specialist Nurse

"I hope you can clear up a mystery for me. I saw:

Dr B (Respiratory, Wy Hospital) on 11/08/10

Dr Be (Urology, H Hospital) on 18/08/10

Dr A (Gynaecology, R Hospital) on 19/08/10

Dr B (Respiratory, Wy Hospital) on 15/09/10

I am due to see:

Dr M (Urology, Wy Hospital) on 01/10/10

Dr E (Neurology, H Hospital) on 20/10/10

Dr Gu (Urology, TG Hospital) turned up unexpectedly at Dr B's clinic on 15/09/10, saw me and left without speaking to Dr B. I do not know whether to keep my appointment with Dr M. There was some confusion about who Dr Gu was. Dr B inferred, from his notes, that he was Dr R (Urology, Wy Hospital/TG Hospital) and gave me Dr R's secretary's number. I rang them and they had never heard of me. I have too many urologists. Do I answer this email with "Yes please" or wait for Dr M?" - Rachael

Email received from Dr Gu

"Further to my consultation last week with you last week, I have had the chance to speak to the anaesthetist. He feels that a spinal tap would be possible with you lying on your side. I am aware that the most important aspect is to ensure adequate pain relief, and understand your fears of not being able to communicate any pain issue across. If you are agreeable to go ahead with the procedure as explained in clinic, I will list you to come in due course. I will liase with the chest doctors so that you can be admitted to the chest ward for optimisation. You'll be in hospital for a few days. Please let me know if you would like to go ahead with the Suprapubic Catheter insertion."

Call made to Dr R's secretary

Rang to query whether I needed to attend appointment with Dr M on 01/10/10 at 10am. Secretary said to speak to GP direct. I said I have been told to speak to her. Secretary refused to say whether appointment should be cancelled and said will speak to a doctor then call back by tomorrow. She gave contact number.

Email sent to Dietician

Rachael emailed Claire to let her know she was tolerating the feed really well and building up to a reasonable dose comfortably.

Visit from Physiotherapist

Rachael confirmed hand splints are proving effective and said she would monitor her headaches in the morning in case they got any worse. Angela showed collar and demonstrated on Richard (student physiotherapist). Angela said the collar could be used both in the car and in the hoist. She also warned about the pressure points on the collar bone but said to use the collar at anytime it is needed. Angela took Rachael's email address. Discussed changes in position, in velcro adjusters and neck button.

Email received from Asisstive Technology

"The handset will always ring once you have initiated the call. I cannot think of another way of confirming but will contact Possum. I will do edits for website tomorrow and pass on for approval." - Steve