Very Bad

Catheter stoma really painful feels like cystitis. Back ache, anxiety, breathing is effortsome.

Bad

head pounding, chest tight, back aches, foot hurts

Bad

head pounding, chest tight, back aches, foot hurts.

Good

despite a fairly sleepless night, morning headache, carer issues, back from MNDA meeting feeling cheered, if breathless. 

MNDA Support Group Meeting

General discussion of MNDA. Dierdre mentioned after hearing about Rachael's effort to breathe and how Bipap was helpful whilst in hospital, but was unsuitable for home ventilation due to "normal" blood gases, that her husband Robert encountered the same problem. Dierdre said she took Robert to his GP who referred him to Wy Hospital for further tests into his fatigue and difficulty breathing. Robert was then granted Bipap overnight.

Orthotics Appointment at B Hospital

Rachael asked for staff to be shown how to put her shoes on for maximum ankle support - shown. Rachael was also told that foot splints would be ordered for her to assist with any ankle pain.

Bad

Lower back pain, foot drop ache, disturbed night, coughing, gagging.