Email Sent to Occupational Therapist

“The shower chair (Freeway) seems to be leaking rust from a ventilation hole on the underside of the seat. Not sure if you can do anything but thought I’d tell you because it’s so new and expensive.” - Debbie

Email Sent to MND Specialist Nurse

“I will wait to hear from you. Sorry about the name change. I have been seperated since 2006 and have decided to revert.”

Email sent to Dietician

"Thanks for arranging refresher training (overnight feeding/pump). Marie gave me a demonstration and talked through issues around pump use. Rachael has been choking more frequently at night, necessitating moves and occassional hoisting. Marie advised detatching/reattaching feed. When there are breaks at night, Rachael has insufficient feed. She is aware she needs to finish the dose or supplement with food." 

Email Received from Dietician

“Thank you for keeping me up to date with everything. I hope things get sorted out asap. On another note, Marie (Nutricia Nurse) was in contact with me and mentioned that you may be interested in having some extra energy via tube? If this is something you are interested in, we can always look at using increased energy feed at night with same volume. Or we could look at trying additional boluses (small volume of feed that is gravity fed down the tube at various times during the day. The latter of these would take about 20 minutes for each bolus. If either of these are something you’re interested in, please let me know and I can organise to visit to discuss further.” - Claire

Email received from MND Specialist Nurse

"I have spoken to a lovely lady called Lesley who is a secretary at Urology, Wy Hospital. She is going to check with Dr Gu as to whether you need to see Dr M. Apparently, both consultants do surgery at Wy Hospital but outpatients elsewhere. Apparently, both consultants do surgery at Wy Hospital, but outpatients elsewhere (Dr M - W Hospital, Dr Gu - TG Hospital). We suspect the referral came into the department and that one doesn't know who the other is. Lesley will get back to me and I in turn to you. I have expressed how difficult it is for you to attend OPA's and that we really want you to avoid attending unnecessarily. " - Sam

Email sent to Dr Gu

"I am keen to proceed as you have outlined. I had a prior appointment with Dr M (Urology, Wy Hospital). This has now been confirmed for 07/10/10 at 9:30am. To avoid any conflict, can I leave it to you to confer with Dr M. This procedure will have a huge impact on my quality of life." - Rachael

Email received from MND Specialist Nurse

"I have left a message for Urology Dept at Wy Hospital to get back to you just to see if they all work together. I think you say "Yes please" to Dr Gu but in the email ask that he cancel the appointment with Dr M because you assume you no longer require the consultation. See if he says differently. We want to save you the trip if we can." - Sam