Spotlighted Blogger: on Patients Like me Website... is me!
Monday, 19 December 2011
Monday, 12 December 2011
Rachael experienced a choking episode, exacerbated by food. There were 2 PA's on hand, but both were quite shocked by the severity of the attack. After some initial communication difficulties, suction machine was used successfully. Attack abated leaving Rachael with weakness and a sore throat, prompting staff training in use of the eTran frame, speakbook and suction machine.
Jo did not complete full range of motion exercises but did attempt "seaweeding" with Rachael's arms which was unsuccessful. Jo attempted walking exercises but only completed half a width before leaving Rachael to float. Communication was difficult as usual.
Thursday, 8 December 2011
Wednesday, 7 December 2011
Tuesday, 6 December 2011
Monday, 5 December 2011
Sharon went through full range of motion exercises focusing on walking. Rachael managed to do 3 widths of the hydro pool, twice. Sharon dislocated Rachael's shoulder underwater, there was no pain and Sharon popped it back in straight away. Rachael felt no ill effect, and felt she really benefited from this session.
Thursday, 1 December 2011
Sore bottom, frozen stiff feet, cramp in left hand.
quiet day getting to grips with some paperwork
Passing glass sensation stronger than usual. Sore neck and shoulders. Hips heavy and aching.
shaky start with diarrhoea and running my chair halfway up a door, things have settled. Still getting hand and leg tremors, jaw locking.
Ankle has slipped and turned painfully. I'm wide awake grinding my teeth. Catheter sore, passing glass sensation.
Had a lovely lunch in Cheshire with my daughter. We laughed and she was a tonic. My dodgy bowels held out until we got home.
Feet freezing and turned over but a reasonable night with only one discomfort wake.
shaved, showered and exercised worn out but in a good way
Woke carer a couple of times but slept straight after each wide awake now but had a long evening nap.
Excellent hydrotherapy although I dislocated my left shoulder. Delicious stew and good company
Catheter bag fell off the side of the bed tugging communication is even harder when I'm in pain
Catheter change at the hospital has been worse but still quite painful going to bed now so I can make it to a science gig tonight
Uncaged Monkeys gig was amazing both carers needed for toileting and keeping crowds from crushing me but I'm elated.
blood testing at gp surgery hurt and my joystick arm (left) gave up halfway home in the bitter icy-blast I'm really tired
Restful sleep but can no longer use the bed control Carer needed for adjustments Woke at 5 feeling refreshed with sore ankles
Good clinic at the respiratory centre then visited my parents. Daughter revising for GCSE I'm napping
Bottom feels stretched and uncomfortable Sore ankles and neck Need to move itching badly
A productive finance meeting with my staffing accountant. I sent off my niece's present. Sadly too tired to manage friend's gig.
Cold woke me! My body clock is out of synch. I can't sleep. My nose is frozen and runny and my legs and shoulders ache
took my small niece and nephew to see Wind in the Willows - tiring!
BM in bed Sore itchy groin Desperately uncomfortable Carer accidentally took phone handset home so no emergency contact
Fairly slow day tired and achy but nothing specific. Probably due a rest and change the pace down a gear
Quiet night. Poohed a little but carer cleaned it. Stiff joints but otherwise fine.
Just had the worst bout of choking so far. 2 experienced PAs were freaked out by it. Dealt with it professionally but scared
Needed to relax as increased spasticity and cramping. Good float at hydrotherapy NOt as good is still pretty close to excellent. Shattered.
After a late tea delayed by daughter's Christmas shopping I was flat out in my wheelchair waking only for pain relief from period pains.
Boring day dragged. Wednesday non driving carer covering for Tuesday carer's holiday. She does make a cosy evening though.
Menstruating very heavily. Need to change the sheets. That's my Mirena coil worth the effort then / sarcasm.
Dragging day 2 not helped by household of 3 sulky, hormonal women and a burst pipe in the kitchen.
Feet freezing, legs cramping, groin feels like it's been kicked by stampeding cattle, kidneys and neck ache, runny nose.
Trying to relax through the period pains, the neck and back ache and general grouchiness to get to a New Model Army gig tonight.
sharp pain in lower back need to pooh. On reflection, it's been a good few days! Feel sick, which puts me in fear of choking.
A good deal better after BM Lower back and neck still ache and nose still runny but lovely carer is looking after me.
Fairly wiped out but a fun day. Dribbling and chewing my cheek a lot.
Reasonably good night. Sore hips and shoulders and a heavy uncomfortable bleed but feeling the benefit of sleep.
Lovely day ferrying my daughter around and doing the weekly shop. Could do with an end to this period now.
Buttocks sore and stretched legs heavy and pressing into the bed shoulders twitching neck aches.
Quiet restful day.Grinding and gnashing of teeth quite apparent.
uneventful night woke a couple of times with random positional issues. Buttocks sore and stretched and groin feels grainy period ending.
Better hydrotherapy session than the last. Physiotherapist had an observer and did a full ROM workout.
Buttocks sore and stretched Legs heavy Neck and shoulders ache Runny nose all over my face. Daughter and her friend giggling to 2am.
Seem to have slept all day. Napping on and off and an extra hour on bipap in bed.
Seem to have done nothing but sleep. Still tired, sore buttocks, cat giving me a dead leg.
Panto with niece wore me out. Daughter socialising til late. I want to stay awake to know she is safe.
Sore buttocks and groin feels grainy. Ankle is painful from foot drop. Feet freezing. Neck aches.
Fun day sorting through Christmas gifts for nieces and nephew. Quite pronounced dribbling in bipap.
Hips and legs sore Ankles painful and feet twitching Dribbling and itching and chewing my cheek.
Very tired Spent the day instructing my PA in cooking for Christmas dinner Fun but exhausting.
Kidney pain severe Diarrhoea in bed
Lovely Christmas eve despite the seriously tiring diarrhoea, which seemed to know the worst moments to strike!
Woke to wish daughter a merry Christmas and can't get comfy.
Gifts exchanged, dinner prepared, daughter off to deliver presents. Stomach settled and behaving nicely. Just the neck ache to sort.
Quite merry, full of food and very tired. Festive day with PA and his partner. Basil Cat did not get on with their dog!
slight toe twitching excessive dribbling and a slipped pillow all sorted by PA.
One small choke and several naps, a trip to my sister's and a minor plumbing disaster.
Good Boxing day.
After all the napping I ought to be better rested but am quite tired. My feet have been so cold. I have shooting pain up both legs.
Bought a lovely brown sofa and started making my costume for the party on Thursday. Thanks due to my arty, crafty PA.
lit. watching paint dry on my train costume. Doing ROM exercises to alleviate cramping.
Feet freezing, legs cramping. Don't want to wake anyone but can't bear it.
Spent a while on bipap then had a restful day. nearly blown over on the way to the chemist's.
Face really itchy driving me to distraction. Arm and left hand twitching, leg cramps.
Random discovery: I can no longer lick my lips or stick my tongue out!
Family came for fancy dress. I felt fairly isolated amongst the hubbub but loved seeing everyone. Children played in my cardboard costume.
Woke up dehydrated and groggy. Buttocks sore and stretched, legs heavy and pressing into the bed. Neck quite sore but not as bad as it was.
My little Glaswegian niece is the most wonderful waker-upper. She chats away to me and all my discomfort is irrelevant.
Phew! Some semblance of normality. Tea was lovely. Relatives have got safely back to Scotland. new sofa has arrived. Dribbling profusely.
Severe neck pain. Pillow feels flat.
Tired out neck sore but resting, trying to take it easy for visitors tonight.
Thanks to amazing PA I am enjoying New Year's Eve. A touch of diarrhoea and a coughing fit nearly confounded my well laid plans.