Tuesday, 24 May 2011
Stuart found that there was still slight "cuffing" and minor bleeding after the change, but Rachael felt there was an improvement after the last two changes. Discussed flushing with citrus juices to alleviate problems with sediment in tubing. Stuart performed a bladder wash and trained staff in it's use. Stuart authorised Rachael's staff to do the bladder wash when needed and is happy to confirm that should professionals/doctors require it.
Wednesday, 11 May 2011
Dr E ran through usual check-list of Rachael's general health and welfare. Discussed the new Bipap and it's benefits. Briefly discussed problems with benefit assessments under new government guidelines. Agreed to contact Preston Wheelchair Services regarding reassessment of headrest; to contact Physiotherapist regarding advice for carer's to alleviate pressure, adjust Rachael's seating position and general ergonomics. Dr E advised Rachael to remove any spares and any packaging in Just in Case kit. Dr E suggested that Bronagh might be able to cutout labels and refix them to make the mediaction fit. Spares could be put away.
Tuesday, 10 May 2011
Sunday, 1 May 2011
I am so tired after yesterday but have got a relaxing day planned.
Fairly quiet day today. feel quite good at the moment.
Quiet day spent with my carer and daughter.
Quiet day but am now going out to a meeting. Hopefully not too long.
Have suffered with cramps all night and am now exhausted.
Yesterday's bad night's sleep has left me wiped out all day.
Suffering with cramps and soreness from pressure spots.
Found yesterday's post letter from from JC + we have a query on your claim (esa) panicking fluttering breath shaking feel really unwell.
feel stiff stomach cramps fluttery breath clammy. Benefit inspection worrying can't sleep.
couldn't deal with benefits so went out! I know... Soon. Tired still shaky but calmer bipap helps.
back hips and ankles sore stomach cramps
tiring day. 3 works operatives to do various jobs, lots of effort to communicate. Blood test took several attempts. Weary.
pressure sore on my bottom, blister on my thigh, bruised back, stomach cramps.
feeling quite chirpy long drive ahead. Bipap worked wonders.
Shattered after clinic, neck, bottom and back pain, can't sleep, ankle agony
relaxing day, well cared for clean and fully hydrated with no appointments or needles
ankle and pressure on bottom quite sore but feel quite invigorated after bipap
brilliant day out. Leisurely visit to a nuclear bunker! Reliving the height of my protest days. such fun, so thoroughly tiring
Hot, dehydrated positional pain headache eyes stinging
productive day feel quite refreshed for the hour. Mainly skyping daughter in the loft with instruction on what goes where
feels like passing glass. Blood clots in catheter tube. Lots of sediment in urine.
carer phoned in sick. bit nervous
fun times sorting through old boxes from the loft with my daughter
coughing, spluttering aching sore bottom ankles painful
constipated backache really painful
very tired after an active day overseeing dinner preparation and sit down family meal.
hot dehydrated positional pain headache itching unbearably eyes stinging
managed to fit into my favourite pants after seemingly a lifetime in sarongs and blankets. Promptly shat myself!
clean dry and back in grown up clothing ;-)
still feeling reasonably lively for all the pulling prodding and exercise in getting clean enjoying iplayer whilst daughter is at the gym
pillow slipped neck and back ache
great tasting food lovely time in the garden between rain bursts bits of diarrhoea and headache but bearable
neck and hips aching catheter tube not draining blood clots in urine
pretty shattered after a tiring day in the garden
eyes stinging very tired can't sleep ankle and foot turned over ow
excellent hydrotherapy session feel tired now but much more loose and relaxed
Stiff joints positional pain but have enjoyed a good sleep
frustrating day exceptionally tired
so hot, dehydrated and sweating eyes stinging and foot splint unbearably painful
lovely day slightly marred by my period pains and sensation of passing glass when urinating blood clots in catheter tube
itching driving me to distraction so much worse in bed than in chair much more immobile constricted
full day: set up ginger beer home brew, went to park; watched bowls looked at boating lake saw waterfall cuddled cat
bit of gut ache, drooling like a saint Bernard! Lungs great
catheter change tube cuffed again. It hurts. I am worn out
catheter stoma very tight and sore I have defecated in bed
still very tender after catheter change started my period with a vengeance and a touch of diarrhoea but good care and plenty of fluids
sleepful night ankle and bottom painful
visit from a dear friend, still sore and fairly exhausted but glowingly happy
period pains! Pressure points sore and joints aching. Need to move and wipe my face
foot and ankle ache bottom painful frustrating can't move dribbling
rain stopped play for me attending the local carnival so spent sedately baking and sorting some correspondence
shoulder ache bottom painful ankle hurts can't sleep
ridiculously tired all day, sore bum cheeks, shooting pain, torso slumping more than usual. constipated
Hot sweating and dehydrated position pain bottom painful
Peaceful: daughter revising hard, carer putting major shopping trip away. I had run out of toiletries completely. I'm catching up on emails
what a fantastic evening. Fire in the garden (deliberate!) and ginger wine in the belly. Better than baclofen, ha ha
too hot, could do with a drink and a move but still relaxed. Slight headache maybe kick back from last night's hilarity?
chair clean, self clean, house clean, sister skyped daughter on way home emails sent OT seen a productive day. Now sleep.