Sunday, 1 May 2011

May 2011. In which I have highs and lows.

01/05/2011 9.40am
I am so tired after yesterday but have got a relaxing  day planned.
02/05/2011 6.52pm
Fairly quiet day today. feel quite good at the moment.
03/05/2011 7.07pm
Quiet day spent with my carer and daughter.
04/05/2011 4.44pm
Quiet day but am now going out to a meeting. Hopefully not too long.
05/05/2011 4.47am
Have suffered with cramps all night and am now exhausted.
06/05/2011 7.01pm
Yesterday's bad night's sleep has left me wiped out all day.
07/05/2011 3.19am
Suffering with cramps and soreness from pressure spots.
08/05/2011 9.17am
Found yesterday's post letter from from JC + we have a query on your claim (esa) panicking fluttering breath shaking feel really unwell.
09/05/2011 5.19am
feel stiff stomach cramps fluttery breath clammy. Benefit inspection worrying can't sleep.
09/05/2011 7.29pm
couldn't deal with benefits so went out! I know... Soon. Tired still shaky but calmer bipap helps.
10/05/2011 3.55am
back hips and ankles sore stomach cramps
10/05/2011 6.38pm
tiring day. 3 works operatives to do various jobs, lots of effort to communicate. Blood test took several attempts. Weary.
11/05/2011 2.26am
pressure sore on my bottom, blister on my thigh, bruised back, stomach cramps.
11/05/2011 11.04am
feeling quite chirpy long drive ahead. Bipap worked wonders.
12/05/2011 3.24pm
Shattered after clinic, neck, bottom and back pain, can't sleep, ankle agony
12/05/2011 7.41pm
relaxing day, well cared for clean and fully hydrated with no appointments or needles
13/05/2011 7.30am
ankle and pressure on bottom quite sore but feel quite invigorated after bipap
13/05/2011 7.34pm
brilliant day out. Leisurely visit to a nuclear bunker! Reliving the height of my protest days. such fun, so thoroughly tiring
14/05/2011 3.45am
Hot, dehydrated positional pain headache eyes stinging
14/05/2011 8.16pm
productive day feel quite refreshed for the hour. Mainly skyping daughter in the loft with instruction on what goes where
15/05/2011 2.04am
feels like passing glass. Blood clots in catheter tube. Lots of sediment in urine.
15/05/2011 9.13am
carer phoned in sick. bit nervous
15/05/2011 5.54pm
fun times sorting through old boxes from the loft with my daughter
16/05/2011 3.05am
coughing, spluttering aching sore bottom ankles painful
16/05/2011 6.16am
constipated backache really painful
16/05/2011 8.40pm
very tired after an active day overseeing dinner preparation and sit down family meal.
17/05/2011 4.10am
hot dehydrated positional pain headache itching unbearably eyes stinging
17/05/2011 11.27am
managed to fit into my favourite pants after seemingly a lifetime in sarongs and blankets. Promptly shat myself!
17/05/2011 7.07pm
clean dry and back in grown up clothing ;-)
17/05/2011 10.18pm
still feeling reasonably lively for all the pulling prodding and exercise in getting clean enjoying iplayer whilst daughter is at the gym
18/05/2011 3.22am
pillow slipped neck and back ache
18/05/2011 8.17pm
great tasting food lovely time in the garden between rain bursts bits of diarrhoea and headache but bearable
19/05/2011 3.58am
neck and hips aching catheter tube not draining blood clots in urine
19/05/2011 11.26pm
pretty shattered after a tiring day in the garden
20/05/2011 3.11am
eyes stinging very tired can't sleep ankle and foot turned over ow
20/05/2011 7.52pm
excellent hydrotherapy session feel tired now but much more loose and relaxed
21/05/2011 4.59am
Stiff joints positional pain but have enjoyed a good sleep
21/05/2011 8.22pm
frustrating day exceptionally tired
22/05/2011 4.35am
so hot, dehydrated and sweating eyes stinging and foot splint unbearably painful
22/05/2011 10.33pm
lovely day slightly marred by my period pains and sensation of passing glass when urinating blood clots in catheter tube
23/05/2011 3.19am
itching driving me to distraction so much worse in bed than in chair much more immobile constricted
23/05/2011 8.01pm
full day: set up ginger beer home brew, went to park; watched bowls looked at boating lake saw waterfall cuddled cat
24/05/2011 4.07am
bit of gut ache, drooling like a saint Bernard! Lungs great
24/05/2011 4.25pm
catheter change tube cuffed again. It hurts. I am worn out
25/05/2011 4.04pm
catheter stoma very tight and sore I have defecated in bed
25/05/2011 8.48pm
still very tender after catheter change started my period with a vengeance and a touch of diarrhoea but good care and plenty of fluids
26/05/2011 5.08pm
sleepful night ankle and bottom painful
26/05/2011 5.25pm
visit from a dear friend, still sore and fairly exhausted but glowingly happy
27/05/2011 4.09pm
period pains! Pressure points sore and joints aching. Need to move and wipe my face
28/05/2011 3.51am
foot and ankle ache bottom painful frustrating can't move dribbling
28/05/2011 4.41pm
rain stopped play for me attending the local carnival so spent sedately baking and sorting some correspondence
29/05/2011 1.05am
shoulder ache bottom painful ankle hurts can't sleep
29/05/2011 7.04pm
ridiculously tired all day, sore bum cheeks, shooting pain, torso slumping more than usual. constipated
30/05/2011 2.17am
Hot sweating and dehydrated position pain bottom painful
30/05/2011 4.57pm
Peaceful: daughter revising hard, carer putting major shopping trip away. I had run out of toiletries completely. I'm catching up on emails
30/05/2011 11.32pm
what a fantastic evening. Fire in the garden (deliberate!) and ginger wine in the belly. Better than baclofen, ha ha
31/05/2011 5.23am
too hot, could do with a drink and a move but still relaxed. Slight headache maybe kick back from last night's hilarity?
31/05/2011 5.51pm
chair clean, self clean, house clean, sister skyped daughter on way home emails sent OT seen a productive day. Now sleep.

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