Wednesday, 1 June 2011

June 2011. In which I have some pain, also fun with daughter and visiting

01/06/2011 3.41am
sore ankle buttocks painful hot dehydrated covered in sweat eyes stinging
01/06/2011 9.46am
clean fed watered getting some gardening done then baking later or at least advising the chef!
01/06/2011 9.48pm
fairly placid day quite a lot of discomfort dealt with effectively by carer but frequent enough to incapacitate me.
02/06/2011 4.06am
sore buttocks ankle and shoulders dry and dehydrated
02/06/2011 8.20pm
absolutely shattered trip to town wore me out
03/06/2011 2.37am
shooting pain from buttock down left leg need to move
03/06/2011 4.56pm
a fantastic hydrotherapy session feel exhausted but such a good workout my hands shoulders and thighs feel amazing so tired though
04/06/2011 2.29am
feeling like passing glass so hot dehydrated and sweating pain in urethra is excrutiating
04/06/2011 9.11am
P.A. did a bladder wash. Such a relief! Now if I could only fix the itching
04/06/2011 9.23pm
Cool day visit to auntie recovering from a serious illness she looked amazing I was very happy. I poohed and had to came home! Heyho
05/06/2011 3.56am
Unbearably hot again pressure in my left buttock pain all the way to my thigh. Profiling bed but can't press the buttons!
05/06/2011 8.19pm
Relaxing day lots of little household chores out of the way
06/06/2011 2.19am
Hot itching sneezing snot all over my face pain in my buttock and left leg
06/06/2011 6.37pm
daughter unwell. I hate that. Taught my P.A. my recipe for pastries and spent the afternoon baking
07/06/2011 3.04am
hot dehydrated and sweating glass sensation sore buttocks ankle back and neck
07/06/2011 9.01pm
tired but comfy some urethral discomfort but short lived and infrequent
08/06/2011 1.57am
passing glass sensation sore ankle buttocks painful shoulders and neck ache
08/06/2011 9.09am
such a relief to be up and about and hydrated! Water is great stuff
08/06/2011 8.34pm
carer went home sick. Exhausting trek to lung clinic then exhausting temp carer
09/06/2011 5.36am
snot all over my face sneezing pain in urethra
09/06/2011 1.14pm
just back from gynae clinic mirena not working waiting for a scan appointment very tired
10/06/2011 3.45am
ankle and buttocks painful but itching stopped
10/06/2011 7.06pm
fun day. Made ginger beer with P.A. Went shopping, got market bargains and excellent cheese. Tasting session was morish
11/06/2011 5.07am
right ankle agony splint worse than useless
11/06/2011 9.10am
Off to a local carnival this afternoon. Hope I stay feeling as good as I do now. My lungs haven't felt so strong in years since I was swimming
11/06/2011 9.08pm
So much fun at the parade. Well worth the effort. I loved it. Slightly dehydrated very tired
12/06/2011 4.50am
sneezing snot running down my face R ankle hurts sore bottom and shoulder blades. itching
12/06/2011 9.03am
P.A. on constant nose and eye wiping duties still itching like a bear but I'm up and about and ready for a shower
12/06/2011 7.06pm
daughter revising P.A. cleaning house and me. Dozing fitfully all day.
13/06/2011 4.16am
Hot dehydrated sweating eyes stinging position pain nose running can't sleep itching everywhere
13/06/2011 6.37pm
lower back ache shooting pain spent all day dosed up on painkillers but still in pain
14/06/2011 3.33am
painkillers wore off about 3 pain all down that back of my hip to my leg and knee
14/06/2011 6.56pm
PA off sick stand in carers and back ache bad combo! Dr gave a cocktail of 4 medicines make me woozy but still in pain
15/06/2011 2.24am
drugs worn off back hip leg pain severe constipation
15/06/2011 7.17pm
struggled through demos interview on assisted dying then doped and woozy from painkillers feel nauseous
16/06/2011 4.30am
lower left back so painful headache and neckache hot and dehydrated
16/06/2011 7.14pm
sick dizzy hip and back pain very tired diarrhoea hoisting so often hurts and wears me out. bottom sore
17/06/2011 3.59am
back pain ankle hurts hot sweating eyes stinging itching head
17/06/2011 5.45pm
hydrotherapy was amazing! The relief of hitting the water and feeling my body relax. Where was searing pain, now a dull ache
18/06/2011 5.58am
can't believe how tired I have been woke several times but slept deeply and well
18/06/2011 8.59pm
took it easy today organised a few household jobs daughter revising hard for her last few exams
19/06/2011 4.04am
sore heel and neck otherwise a relaxed night fell asleep straight away with none of the usual yawns and spasms
19/06/2011 12.29pm
clean, dressed, good to go. Gig at the footy club this afternoon but driver carer is off sick. :(
20/06/2011 3.28am
passing glass sensation too hot and dehydrated sore neck weight of body and bedding wearing down
20/06/2011 7.03pm
fun day baking slight shortness of breath so had an extra do on the bipap
21/06/2011 2.17am
ridiculously hot can't sleep dehydrated feel heavy heels sore buttocks ache
21/06/2011 9.46pm
visited mum. Journey was too much in uncomfortable courtesy car legs and buttocks ache dehydrated
22/06/2011 5.49am
ankle hurts hot sweating slight headache still tired but slept right through
22/06/2011 8.04pm
quiet day slept in the afternoon and most of the evening saw my sister and nieces in Australia via Skype :)
23/06/2011 4.00am
passing glass sensation sore ankle and bottom painful constipated
23/06/2011 5.19pm
gynae appt scanning for the defunct mirena coil no hoist done with difficulty and the obligatory patronising. shattered
24/06/2011 2.29am
heels and buttocks sore ankle agony splint pressing on the ball of my foot
24/06/2011 5.33pm
Hydrotherapy was excellent got to go this week as a bonus extra as someone else couldn't make it :)
25/06/2011 5.42am
foot turned over ankle hurts and I can't get back to sleep but then I have slept soundly since 7pm!
25/06/2011 6.33pm
shoe shopping with daughter was lovely. Drained but thoroughly worth it felt strong all day.
26/06/2011 4.52am
slept right through woke with postural pain ankle and neck sore but not as severe as previously
26/06/2011 7.33pm
made the most of sunshine and energy, went to a local carnival noticed increasing difficulty using wheelchair keypad
27/06/2011 6.01am
hot dehydrated sweating and itching eyes stinging bottom painful but slept soundly again long may this continue
27/06/2011 5.57pm
Went for a wheel through the woods-it was gorgeous slightly dodgy stomach. Daughter at school nurse with nausea and dizziness
28/06/2011 4.47am
agony, severely overheated, horrible stabbing pain in my back lower- middle right.
28/06/2011 3.58pm
after a bit of ROM exercise and plenty of fluids the pains went and I caught up with my sleep. Daughter feeling much better.
28/06/2011 11.01pm
Fleet Foxes gig was excellent
29/06/2011 6.48am
Slept like a baby. Have just poohed the bed so that feels unpleasant but am still euphoric from last night
29/06/2011 3.19pm
still feeling strong. slowed the pace right down today slight neck ache but a good day feeling hungry which is rare and welcome
30/06/2011 4.30am
hot. painful r. kidney again feel dehydrated stomach churning both an ache and a stabbing pain r lower-middle of my back
30/06/2011 7.26pm
very slow day, tired and sluggish constipated with aching r kidney. PA on holiday, stand in carer

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