Friday, 1 July 2011

July 2011. In which I have a lot of pain, happy times with family and some good sleeps.

01/07/2011 4.48am
kidney ache building up again. I need the toilet. Bottom and heels sore. Too hot and dehydrated
01/07/2011 7.24pm
feeling quite well marred by call from school daughter sick and dizzy again
02/07/2011 3.49am
sore ankle and bottom slept fitfully too hot
02/07/2011 3.08pm
lots of little outdoor jobs overseen Daughter feeling a bit better Feeling quite well myself though wheelchair control hand still playing up
03/07/2011 4.44am
hot dehydrated constipated severe kidney pain can't move bed control snotting and sneezing
03/07/2011 9.19am
at last a BM! In a foul and foetid noxious cloud still a bit queasy but the pain has gone. Senna, movicol and suppositories
03/07/2011 8.10pm
relaxing day lots of effort to do anything l hand fairly unresponsive well looked after clean hydrated and rested wouldn't want it every day
4/07/2011 4.01am
stomach churning legs pressing into the bed heels sore hips buttocks and shoulders painful
04/07/2011 8.07pm
day of waiting for garage quite tired when I got out lovely walk around the park poohed sat on it over bumpy roads home no hot water
05/07/2011 4.58am
Bright sunshine snotty nose positional pain no sound on eyegaze passing glass sensation
05/07/2011 8.50pm
catheter change. Cuffed again. Incredibly tender and aching. Flatulent sensation in bladder!
06/07/2011 4.49am
Catheter stoma and surrounding area very sore. Position uncomfortable heels and bottom stretched and painful.
06/07/2011 1.51pm
New catheter now down to a dull ache Busy morning w/ch engineer then phlebotomist Totally wiped me out
07/07/2011 2.43am
Bowel movement. Most uncomfortable! Also now aware of how much my heels and bottom hurt
07/07/2011 6.35pm
Spent all day on personal hygiene (in between ferrying daughter around) being so manhandled has shattered me - early night  ; )
08/07/2011 6.03am
Slept straight through deeply. Quite dehydrated and aching position pain but feeling the benefit of sleep
08/07/2011 7.13pm
relatives visiting from Scotland staying for a few days My little nieces are amazing if exhausting slight shortness of breath extra bipap
09/07/2011 6.06am
Woken by youngest niece "reading" stories lovely. Sore ankle fixed quickly. Sneezing and snotty. Sorry sister-in-law!
09/07/2011 8.53pm
excellent wheel out if exhausting and r hand weaker my younger niece walked holding my wheelchair arm happy times
10/07/2011 4.41am
buttocks and neck ache but a restful sleep breath and sleep much easier since using bipap
10/07/2011 8.39pm
Nephew's baptism, church heavy with candles and incense Difficulty breathing soon recovered very tired
11/07/2011 2.33am
ankle and bottom hurt can't move dribbling into neck with cold pools forming
11/07/2011 7.53pm
excellent tea made under my instruction. I had a taste. Good pastry. Family gone back to Scotland. Tiring but great fun to see them.
12/07/2011 3.45am
cat sick on duvet can't sleep
12/07/2011 8.14pm
incredibly tired today drained now visitors have gone. Slept or dozed most of the day
13/07/2011 4.45am
horrible lower - middle back/ kidney pain feel sick and clammy
13/07/2011 6.48pm
Another niece visit with her new baby brother. Hectic! Quite a sore sciatic pain but so tired I'll sleep anyway
14/07/2011 5.11am
sore ankle and thighs heels hurt, bottom has pressure pain, eyes stinging need to move can't press bed control
14/07/2011 8.00pm
quiet day dealt with tax and other financial returns slept then did a weekly shop. Conspired with daughter for friend's birthday.
15/07/2011 5.36am
hot dehydrated constipated kidney ache catheter and urethra have the passing glass sensation
15/07/2011 7.19pm
fantastic hydrotherapy session feel relaxed in places I didn't know were tense sleep now
16/07/2011 6.37am
overslept!!! usual ankle and bottom pain but still feel so relaxed
16/07/2011 9.42pm
Managed to drag myself to hardware shop for bits that I thought I had but didn't. Still ridiculously relaxed can't lift head or anything
17/07/2011 5.15am
BM in bed not so good, wonky r ankle flopped over and sore but another excellent sleep. A definite hydrotherapy bonus.
17/07/2011 9.19pm
taken it easy all day apart from minor teen catastrophe for daughter! That sorted, muscles still relaxed breathing easier thirsty
18/07/2011 5.08am
heels sore buttocks and ankle hurt making sure daughter gets off to school trip in half an hour
18/07/2011 7.55pm
spent the day at the Infirmary, totally wasted journey just to confirm that my coil is working fine. sumptuous tea made up for it.
19/07/2011 6.25am
One joint last night, followed by the best night's sleep I can remember. woke feeling thoroughly refreshed
19/07/2011 8.37pm
Incredibly strong all day. I was able to lift my elbows slightly and sometimes adjust my back position. I feel amazing
20/07/2011 6.42am
another excellent sleep I can certainly feel the benefit. I don't feel as good as yesterday but definitely above my average
20/07/2011 9.09pm
Felt so strong that I went with friend and his small son to a safari park Great Fun Tired not exhausted still able to lift hands to chin
21/07/2011 6.58am
another refreshing night Slight BM in bed More due! Sign I ate real food yesterday I'm getting bigger bra no longer fits
21/07/2011 7.08pm
took car for a minor repair then to visit my parents feel quite drained
22/07/2011 5.19am
after arguing with carer last night a disturbed sleep, passing glass sensation and positional discomfort
22/07/2011 11.09am
a fairly rubbish morning tired grumpy menstruating I found another few blisters on my leg from catheter tube
22/07/2011 11.32pm
excellent afternoon and evening  A little weary and l hand aching but still able to move my back a little
23/07/2011 6.26am
Hot dehydrated sweating but an otherwise reasonable night
23/07/2011 5.51pm
visited my auntie with my brother lovely although we could barely understand one another scary car ride shattered me
24/07/2011 5.42am
Ankle aching tired but can't sleep sticky and itching
24/07/2011 8.19pm
Quiet day slept a lot felt groggy and sore in general
25/07/2011 4.57am
position pain sore heels ankles thighs and buttocks blisters on my legs painful mild choking episode was quite scary
25/07/2011 10.06pm
Day around the museum wore me out but worth it still menstruating
26/07/2011 4.37am
Passing glass sensation is back toes bent and painful bottom sore legs ache
26/07/2011 11.05am
up washed and dressed drugged up bladder flushed through feel much more human
26/07/2011 8.49pm
sciatic pain causing a disturbed evening 
27/07/2011 4.17am
BM following an uncomfortable night lying on a crease now soiled sheets heels so sore I could cry still menstruating
27/07/2011 7.43pm
fairly placid day daughter away at her auntie's napped extensively and watched too much telly
28/07/2011 2.47am
excruciating sore bottom feels like my skin is being ripped apart in flames
28/07/2011 8.50am
Being pampered by lovely carer bottom grateful to Sudocrem for cooling gentleness
28/07/2011 7.42pm
Woke up 10am from impromptu nap tired and aching continued all day bottom stretched and sore exhausted hard to focus brain-freeze headache
29/07/2011 5.45am
hiccups sore bottom excessive drooling lower back pain need bowel movement
29/07/2011 10.54pm
Hydrotherapy bipap then a nap I feel amazing so strong
30/07/2011 5.50am
brilliant night woke once needing help to adjust neck position then straight back to sleep
30/07/2011 7.57pm
easy day still feeling relaxed and alert to early evening may have shown off a bit quite tired now L hand largely unresponsive
31/07/2011 5.43am
restful sleep woke with some position pain and slight neck ache
31/07/2011 7.05pm
went to the rush cart festival at the lake tiring but fun slightly wonky in my chair put pressure on my sciatic nerve

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