Position pain and cramps. Itching everywhere. Really need to move knee.
routine hospital appointment re bipap then uniform shopping with daughter for next term. Shattered.
Woken by passing glass sensation labia sore shoulders and neck ache legs heavy heels and buttocks sore and stretched.
After blood clots in urine this morning everything seems to have settled dashed out for emergency homework supplies now need nap.
So exhausted all afternoon slept all evening rig has retracted right to the rubber, pulling in my stomach, painful.
a fairly placid day energy failed quite early much napping
Disturbed night slept fitfully too uncomfortable and hot.
swapped shift w/day carer went for a stroll, watched bowls very tired but less exhausted frequent position changes required.
Only woke a couple of times with pressure pain and sticky mucus which can be frightening otherwise restful sleep
lovely day. Took Basil cat to the vet. He is well. I was caught in the rain. Ate a good tea and entertained guests in the evening.
Needed to move postural pain several times. Runny nose all in my mouth BM squelching in my bed and sore.
Left hip aching and quite a bit of excess mucus in my mouth nostrils blocked. Wednesday carer phoned sick for tomorrow. Worried.
Postural pain ankles and thighs heels and hips aching. Can't quite shift mucus. Big L toe hurts. Must sleep.
A day at the museum with my 2yr old pal and his dad. Everything worked and felt relaxed. Even my present tiredness is pain free.
Slept through bar once very refreshed but with a sore and aching bottom. Back feels uncomfortable too.
Good day of pampering and laughter with carer. Big L toe still sore. Need moving a lot.
Painful passing glass sensation with slight urine leak onto pad. Uncomfortable position, legs ache and ankle sore.
Lovely float at hydrotherapy but not much exercise with new physio.
ankle and big L toe sore. Sitting on a crease. Bottom stretched uncomfortable. Limbs heavy pressing into the bed. L pointer finger cramped.
Very tired so quiet day. Decided not to brave the weather. Toe still sore to touch.
Muggy night can't sleep. Can't get comfy.
Quiet day windy and raining so I gave the Rush Bearing Festival a miss. Blister on bottom sore.
Bottom sore feels stretched legs heavy neck off balance.
Well, clean, fed and covered in Sudocrem! Lovely day baking with carer.
Passing glass sensation stronger than ever. Hurts.
incredibly tired but enjoyed a long shower wrapped up and watched the rain lash down sorted paperwork.
Passing glass sensation strong, suspect there will be blood clots in catheter ankle and bottom hurt back feels like something is pressing in.
Clinic day at the hospital. Consultant made me smile even whilst booking my rig change. Very tired now.
Passing glass sensation again. Back ache. Blocked and runny nose. Hand sore and cramped.
busy day of admin. Clean fed and rehydrated some positional discomfort easily fixed slight passing glass sensation.
Inconsolably itchy. Want to rip my face, gouge my eyes and tear at my hair. Hot.
took an extra baclofen to counter this morning's violent DTs. Felt great all day.
Slept from 4.15pm. yesterday don't recall carer shift ending, going to bed rien! No feed on overnight badly dehydrated.
got in some training for The Great North Run-lying in a chair being pushed is harder than you'd think!
Up and dressed and ready to set off to Newcastle to take part in The Great North Run.
Could be v good or v bad too tired and achy to tell. You should see the brother who pushed me round.
Took extra drugs yesterday. They caught up! Tired, aching and hungover but the race was awesome!
woozy and achy all day-tired. Dentist appointment was uneventful but the journey and communication was tiring.
Dribbling saliva down my neck forming pools. General discomfort and knotted stomach. Waves of panic. Overheating.
Catheter change hurt back ache and groin sore. Feel absolutely drained.
Sore from catheter change position uncomfortable excessive drooling.
Quite subdued day. Some discomfort and not a lot of energy. Car failed its MOT!
Slept reasonably. Usual discomfort and painful bits. All seem worse when lying awake and immobile for hours on end.
The loveliest birthday. Mum and Dad came to tea and my daughter spoiled me rotten. Asleep by 7pm!
Position uncomfortable need to move my bottom and bend knees. Snotty nose dribbling down my face.
feeling quite stiff after a fairly full-on week looking forward to hydrotherapy.
Hydrotherapy day. Concentrated on knee bends and shoulder stretches. Walked across the pool with assistance.
can't sleep. 2nd and 3rd fingers on each hand sticking together, 3rd overlapping 2nd.
fun day lovely warm shower since electrician fixed it. Still feeling loose and relaxed after hydrotherapy.
Panic over now but quite a scare. Took evening tablets orally baclofen or riluzole stuck in throat dissolving throat numb started choking.
Haven't slept well, scared of choking
quiet day still quite shaky but calmer spent a lot of time napping
Woke sweating dehydrated neck sore and ankle has fallen over. Hip feels displaced.
Friend came to tea. Spent pm with carer preparing experimental stew Courtesy car arrived. OT came to measure me for recliner chair.
Slept well but woke with painfully stiff left knee.
Mundane but necessary jobs day. Gas engineer for landlord safety check and bladder wash were the highlights.
Stomach ache I just want to curl up into a ball.
Lo and behold that stomach ache has become full on cramps and menstrual period with a touch of sniffly cold thrown in to boot.
Skin on my bottom stretched and breaking Stomach cramps so bad that I cried.
Absolutely shattering day with lovely speech therapist hopefully constructive.
Sneezing snot running down my face feeling uncomfortable bottom stretched and sore.
Still bleeding so absolutely shattered but an otherwise great day in the surprise September sunshine.