Rachael received a follow up letter from Dr P after her appointment with him at S Hospice. He wrote about the problems that Rachael is having with her feed and that he recommended Erythromycin to help with these problems.
He then mentioned that Rachael's ventilation seems to inflate her stomach and he thinks that this is contributing to her discomfort when she tries a feed.
He then wrote about the discussion that he and Rachael had had regarding her bowel problems. He thinks that Movicol would be helpful for Rachael in the long term.
Dr P was also concerned about Rachael's sleeping problems but after some discussion he and Rachael came to the conclusion that they could not resolve this problem at the moment as Rachael is worried about the effects of night sedation.